Watch: Carrie Ann Inaba Reveals How Sjögren’s Disease Affected Her ‘Dancing With the Stars’ Experience
Carrie Ann Inaba tried to waltz away from sharing her health struggles.
After the Dancing With the Stars judge was diagnosed with Sjogren’s disease in 2013, she was nervous about letting the show know about her battle with the chronic autoimmune disorder for fear it would affect her role on the long-running competition series.
“At first I was afraid to tell them—for many years,” Inaba exclusively shared with E! News’ Will Marfuggi. “In fact, I asked somebody and I said, ‘I want to talk about this.’ And they were like, ‘You shouldn’t.’ Which is weird, because I’m very honest and open. I talk about everything.”
As the 58-year-old recalled, shewent several years without mentioning her illness, but is now incredibly grateful that she did.
“I have been met with so much love and support,” she explained. “Last season I missed the premiere episode. It was the first time in 20 years I ever missed a show since day one. And I was so afraid, I was preparing for the worst, like, ‘Oh, must be over.’”
Thankfully, Inaba needn’t have been worried.
“They understood and they just knew that I needed the rest to recover and they gave me that opportunity and I’m so grateful,” she continued. “I was deeply touched that I could talk about that after and maybe other people in their work environment would be given the same grace.”
“I’m proud of Disney and ABC and BBC for doing that for me,” she added, “because they really set a wonderful example of how you help people who are living with something like Sjogren’s disease.”
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The experience also made the choreographer realize how important it was to be open about her illness, which is one of the reasons she partnered with Novartis to raise awareness for Sjögren’s disease through the Sjöut for Sjögren’s campaign. Especially because getting a diagnosis can often prove to be difficult for those struggling with the disease, with Inaba noting, “the symptoms are very sort of scattered and all over the place.”
“Oftentimes women are gaslit with these kind of symptoms—symptoms that seem unrelated,” she continued. “A lot of doctors will minimize it. And then you start to minimize it yourself. So this is what is so great about this partnership that I’m doing with Novartis, Shout for Sjogren’s, we really want people to talk about the full experience of living with Sjogren’s disease, because it’s challenging.”
The challenge also comes from the “unrelated symptoms,” as the reality star shared that it can feel like too much to mention all of it to a doctor at one time.
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“You kind of don’t want to because it feels like you’re taking up too much time,” Inaba explained. “But you have to take up time. You have to take up space. You’ve got to use your voice. You got to shout it out.”
And by shouting out and being open about the experiences she and others have faced, Inaba hopes she can help make others feel less alone.
“After this, hopefully people will know more about what Sjogren’s disease is,” she emphasized. “They’ll know that it’s challenging. They’ll know that you need to see a rheumatologist. They’ll know that there are unrelated symptoms.”
As she put it, “And maybe people who are dealing with unrelated symptoms will go to the website, sjoutforsjogrens.com and maybe they will find solutions or see themselves in somebody else.”
Inaba isn’t the only star to candidly open up about their health battle. For more, keep reading.
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